Endocrine Abstracts

We report the results of the first Europe-wide survey of the Quality of Care of patients with multiple endocrine neoplasia (MEN) disorders by the European MEN Alliance (EMENA).Method: An online questionnaire was distributed via patient groups, social media and health professionals. A total of 284 responses were analysed.Results: 35% (n=99) of responses were from UK patients and 65% (n=185) from 17 other EU countri...

The German Network for Pituitary and Adrenal Disorders (Netzwerk Hypophysen- und Nebennierenerkrankungen e.V.) conducted a nationwide survey on unmet needs of patients with multiple endocrine neoplasia (MEN) in Germany. The study aimed to identify unmet needs in patient care and quality of life, as well as potential areas for improvement.Methods: The survey was based on a questionnaire developed by the European MEN Alliance (EMENA) and was distributed by...